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2013 Family Voices of Alabama

Family Voices of Alabama: Family-to-Family Health Information Center’s 2013 Partners in Care Summit

April 8-9, 2013

Overview:

The Partners in Care Summit was developed by the Family-to-Family Health Information Center, and funded by the Health Resources and Services Administration (HRSA)/Maternal and Child Health Bureau (MCHB)/Division of Services for Children with Special Health Needs (DSCSHN), through grant #H84 MC 12901 and grant #D70MC21936.

Brochure (4 pages)
Day One
Day Two

Day One - Monday, April 8, 2013

Advocacy, Medicaid, and Legal Issues (1 hour, 15 minutes)
	J. Patrick Hackney Senior Staff Attorney Alabama Disabilities Advocacy Program (ADAP) Tuscaloosa, Alabama
Resources	Handouts (8 pages)
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Building a Team to Convert Dreams to Reality (24 minutes)
	Judy Barclay Founder / Author Full Life Ahead Foundation of H.O.P.E.
Resources	Handouts (6 pages)
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Creating Your Support System (40 minutes)
	Beth Newlin Family Voices of Alabama Betsy Prince Coordinator Alabama’s Early Intervention System Tim and Rhoda Trimble Founders Aaron’s Staff Respite Care Ministries
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Day Two - Tuesday, April 9, 2013

Medical Home at 25: Where It’s Been, Where It’s Going (1 hour, 5 minutes)
	W. Carl Cooley, MD Medical Director Center for Medical Home Improvement Chief Medical Officer Crotched Mountain Foundation Adjunct Professor of Pediatrics Geisel School of Medicine at Dartmouth Hanover, New Hampshire
Resources	Handouts (12 pages)
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Improving Health Care Transitions from Pediatric to Adult Care Settings: The Six Core Elements of Health Care Transition (1 hour, 5 minutes)
	W. Carl Cooley, MD Medical Director Center for Medical Home Improvement Chief Medical Officer Crotched Mountain Foundation Adjunct Professor of Pediatrics Geisel School of Medicine at Dartmouth Hanover, New Hampshire Mallory Cyr National Youth Program Manager Got Transition The National Health Care Transition Center Master Degree Candidate Maternal Child Health Concentration Boston University
Resources	Handouts (12 pages)
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An Alabama Perspective: Care Coordination and the Transition Process in the Pediatric Medical Home (20 minutes)
	D.J. Anagnos, MD Pediatrician Prattville Pediatrics Prattville, Alabama
Resources	Handouts (5 pages)
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Complex Care Transition Programs in Alabama (56 minutes)
	Cindy Blackburn, RN, MSN Clinical Care Coordinator Adult Down Syndrome Clinic University of Alabama at Birmingham Dewana Carter, MSW, LGSW Adult Cystic Fibrosis Program Outpatient Social Worker University of Alabama at Birmingham Betsy Hopson Spina Bifida Program Director Children’s of Alabama University of Alabama at Birmingham
Resources	Blackburn Handouts (12 pages) Carter Handouts (4 pages) Hopson Handouts (7 pages)
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